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Finding the support that's right for you

Wondering who to open up to?

Whether you’re someone who has a huge network of good friends or if your social circle is much smaller and more intimate, it might become difficult to decide whom to speak with about your disease. So what to do?
  1. Start by considering how much you want to talk about what you are going through. If you were to tell everyone, would it give you the freedom to talk openly about it, or would it become a burden if people continually ask for updates?
  2. Make a list of all the people you would feel comfortable talking to. 
  3. Now consider how involved these individuals are in your life. Think about how often you speak to them and take their personalities into consideration. Is this someone you can count on to be empathetic, tactful and discreet? Will they remember to ask how you are feeling but also know when to keep quiet?
Remember that you can tell people what is happening and still ask them to steer clear of the topic for your own sake. Just be aware that they may have more questions or want to help. In this case, you can assure them that you value their friendship and support, but that the best way they can help is by keeping things normal.

Talking it out (or not)

There could be dozens of reasons that you do not want to talk about your disease. So when you are deciding who to open up to, or whether to open up at all, be sure to have realistic expectations of the people around you, and to always put yourself and your emotional needs first. 

Consider joining a support group

Here are a few ways that a support group might help:
  • It may be hard for your family and friends to understand what you’re going through. A support group offers a place to talk with others who understand.
  • You can learn from people in later disease stages and help those with less experience than you.
  • You may be concerned that your deepest fears could upset your loved ones. A support group offers you the freedom to be completely open without worrying about the consequences.
  • Scheduling time to talk about your condition might help you get it off your mind the rest of the week.


UK/IE/MAT- 72249. April 2024